2020 hasn't been a great year. Quite apart from climate and politics, the changes have been massive. And not least in terms of the cancellation of every single fundraiser I had planned to complete. In some respects, the restricted living situation, changes to lifestyle and reconsideration of what constitutes the new normal have been really useful. It's important to understand what matters, what is important, how you see yourself and the world around you. And change is a powerful way to force that reassessment. So, along with a number of enlightened friends who suggested I might take my anger issues and turn them into something useful, I'm changing the way I look at problems and issues and triggers and reapplying myself to understanding and witnessing how that change can be managed. In much the same way as we all have to reassess how we now engage with the world around us. For many though, Covid 19 and the associated issues have caused immense problems, let alone grief.
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Why Cycle for SMA UK? What do you know about the debilitating and destructive condition known as Spinal Muscular Atrophy (SMA)? If you're anything like me, you've just found out more about it from that first line than you knew 30 seconds ago. It's destructive and debilitating. NHS UK defines SMA as " a genetic condition that makes the muscles weaker and causes problems with movement. It's a serious condition that gets worse over time" Depending of the severity of the condition, which can present at various stages of life from childhood to teenage, people with SMA experience a progressive loss of muscle strength and facility. That's not just arms and legs. It directly impacts on all muscles, affecting breathing, swallowing, the most basic of human functions. The most obvious impact, though, is on mobility. There is no cure! There is, however, support for those with SMA and their families. Spinal Muscular Atrophy UK ( https://smauk.org.uk/ ) pro